Help Amber Get Treatment for Fibrous Dysplasia!
(I decided to make a new version of this post because the first one was too long and wasn’t getting any notes.)
I’m posting this on behalf of a really sweet school friend of mine who had to drop out of our program this semester due to her girlfriend’s extreme medical issues.
In summary: Amber has fibrous dysplasia, a rare disease that causes painful tumor-like masses and lesions on her bones. She and her girlfriend Marcela have been seeking treatment here in Tucson, but they’ve been subjected to medical neglect and homophobic harassment from the medical care team that is supposed to be “helping” them.
This is what Amber has written on her fundraising page:
Hello and good afternoon, My name is Amber Owens I am currently located in Tucson Arizona to find treatment and care for the disease that I have been diagnosed with. The doctors I have been dealing with unfortunately will not take the time to research and properly help me further. My neurologist has refused to even give me any medications to help with the excruciating pain I have to endure on a daily basis. Time and time again he’s asked me how my pain is, but then just tells me that he will do nothing for it until I have a surgery that I myself and a Doctor I have showed my case to definitely agrees against. The last time I saw him he refused to give me anything and insisted I leave with an over the counter topical cream.This neurologist has a neurosurgeon friend that also backs up this surgery and “will snip my nerve with no feeling in face but you’ll feel nothing”. I fear for my life having this case in the hands of doctors who simply just don’t care.I really have nothing else to do and I am starting to give up hope. To finally get some help we’ve found a few doctors and clinics in Seattle Washington that I need to get to by December. Unfortunately due to the pain and pressure I cannot travel via plane.. which is why I need help from all of you. I have to drive all the way there and right now I don’t have the funds to do so. Help me find help. Thank you everyone.
Marcela is herself disabled (she struggles daily with pain and exhaustion due to her fibromyalgia) but her devotion to helping her partner has been selfless. Amber’s tumor is on the back of her head and has greatly affected her vision, and she is unable to do much on her own without Marcela’s help.
Amber and Marcela are trying to raise $2,500 to drive from Tucson to Seattle by December. There are doctors who can help her there, and she cannot fly in her current condition.
Please help my friends Amber and Marcela in finding the right doctors to treat this painful disease.
https://www.gofundme.com/finding-treatment
September 6, 2018 fundraising total: $30/$2,500
still stuck at $30 after 5 whole days 😔
Published
Don0303 